#1 Ranked Children’s Hospital by U.S. News & World Report
MyPatients provides referring primary care providers with secure access to their patients’ information.
Boston Children's has launched the world's 1st program dedicated to offering hand transplants to children who qualify.
Innovation insider is a semi-monthly e-newsletter analyzes innovations at Boston Children’s, other academic medical centers and from industry.
Read the latest blog by a Boston Children's doctor, clinician or staff member.
There are many ways you can help children and their families get the care they need.
When the evaluation is complete, the transplant team informs the family of the results. They also communicate these results to the child’s primary care physician. In all of these situations, the kidney transplant team works closely with the family and the child’s physicians to develop a coordinated care plan.
Once it is determined that a kidney transplant is the most appropriate treatment option, the child will be “listed” on a national computer system, United Network of Organ Sharing (UNOS) as a potential transplant recipient. UNOS matches organ donors by weight and blood type with individuals waiting for a new kidney.
UNOS receives data about patients who need organ transplants from all over the country and places them on a waiting list. The Pediatric Transplant Center will send the data to UNOS and update them as the child’s condition changes. Criteria have been developed to ensure that all people on the waiting list are judged fairly as to the severity of their illness and the urgency of receiving a transplant.
Children waiting for a transplant receive “points” for several factors, including how long they have been waiting, the closeness of the match with an organ that becomes available and the location of the transplant center in relation to the location of the donor. When a kidney from a deceased donor becomes available, a computer searches the list and ranks all candidates in order of their total number of points and the kidneys are offered to the candidates with the most points. If the match isn’t right, or if it’s not the right time for the patient to receive a transplant, the kidney is offered to the next candidate on the list.
The national average for waiting time on the deceased donor kidney organ list is about six to 12 months for children, but because Boston Children’s is part of the New England Region of UNOS, children currently wait about three months for an organ. The kidney transplant team will support the family during this difficult waiting period. Our social worker, child life specialist and child psychiatrist or psychologists are also available to check in with the family as needed.
The Kidney Transplant Program has surgeons and physicians available 365 days a year, 24 hours a day and seven days a week. A kidney transplant surgeon or physician is available to facilitate organ acceptance, procurement and implantation and address urgent patient issues.
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”