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There are many ways you can help children and their families get the care they need.
What treatments are available for conditions associated with Turner syndrome?
Although there is no cure for Turner syndrome, many of the more serious problems can be treated:
Growth hormone therapy can increase a girl's growth rate and achieve greater final height. Some patients do not respond to this therapy.
Estrogen therapy can help a girl develop secondary sexual characteristics. This therapy is often started when a girl is between ages 12 and 14.
Progesterone therapy can bring on a monthly menstrual cycle.
Certain medications can treat high blood pressure, diabetes and thyroid problems, if needed. Learn more about medications.
Counseling from a qualified mental health professional can help a girl deal with some of the sensitive psychological and emotional issues linked to this condition.
While Turner syndrome is a complicated condition that requires constant medical oversight, most girls with Turner syndrome will go on to lead normal, happy lives with proper care.
As a girl with Turner syndrome grows into adulthood, she may choose to pursue in vetro fertilization or adoption if she wants children.
Coping and support
At Boston Children's Hospital, we understand that you may have a lot of questions when your daughter is diagnosed with Turner syndrome: How can I help my daughter feel less self-conscious about being “different”? How will it affect her long-term health? How do I tell her that she's unlikely to be able to have children on her own?
These are serious concerns, and we've tried to provide some answers on this site. There are also a number of additional resources at Children's to guide you and your family through diagnosis and treatment:
Patient and family resources at Children's
As part of a multi-specialty program, the Gender Management Service (GeMS) at Boston Children's provides endocrinologic evaluations and offers various psychological and social work support services. GeMS is also working with Children's Division of Adolescent Medicine to develop clinical practice guidelines for the use of estrogen therapy in the induction of puberty. For more information, visit the GeMS web site or call.
Boston Children's Center for Families is dedicated to helping families locate the information and resources they need to better understand their child's particular condition and take part in their care. All patients, families and health professionals are welcome to use the center's services at no extra cost. The Center for Families is open Monday through Friday from 8 a.m. to 7 p.m., and on Saturdays from 9 a.m. to 1 p.m. Please call 617-355-6279 for more information.
The Child Life program at Boston Children's is designed to offer additional support for kids and families dealing with health problems. Your child's optometrist or ophthalmologist may refer you to these specialists for assistance.
The Experience Journal was designed by Boston Children's psychiatrist-in-chief David DeMaso, MD, and members of his team. This online collection features thoughts, reflections and advice from kids and caregivers dealing with a variety of medical problems and procedures.
Our Behavioral Medicine Clinic helps children who are being treated on an outpatient basis at the hospital—as well as their families—understand and cope with their feelings about:
Boston Children's Integrative Therapies Team offers several different types of therapies for hospitalized kids, as well as consultations and educational sessions for parents and healthcare providers. The team specializes in treatments that can complement a child's medical care, including:
Boston Children's Department of Psychiatry offers a free booklet, "Helping Your Child with Medical Experiences: A Practical Parent Guide” (Adobe Acrobat is required). Topics in the booklet include:
Children's International Center is a dedicated resource for patients and families from countries outside the United States. The center can provide assistance with everything from reviewing medical records to setting up appointments and locating lodging. Contact the center by phone at 1-617-355-5209.
For Patients and Families site, you can read all you need to know about:
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”