Tuberous Sclerosis Complex (TSC)

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Contact the Tuberous Sclerosis Program

What is tuberous sclerosis complex?

Tuberous sclerosis complex (TSC) is a rare genetic condition that causes tumors to grow in many different organs of the body. Tumors grow most often in the brain, skin, heart, eyes, kidneys and lungs. Almost all of these tumors are benign (not cancerous), but they can cause a variety of health problems.

The symptoms of TSC usually appear before a child is 6 months old. The severity of the condition can vary widely — in some children the disease is very mild, while other children may have life-threatening complications.

Tuberous-sclerosis-patient-story

Care for tuberous sclerosis complex

At Boston Children’s Hospital, the Multidisciplinary Tuberous Sclerosis Program is a team of pediatric specialists who are dedicated to providing coordinated care for children with TSC. The program is directed by a child neurologist, registered nurse coordinator and a genetic counselor that are experienced in working with patients and families affected by TSC.

Make an appointment

We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”
- Sandra L. Fenwick, President and CEO

Boston Children's Hospital
300 Longwood Avenue, Boston, MA 02115
For Patients: 617-355-6000 | 800-355-7944
For Referring Providers: 844-BCH-PEDS

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