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There are many ways you can help children and their families get the care they need.
Children treated for a pediatric thrombosis through Dana-Farber/Boston Children's Cancer and Blood Disorders Center's Thrombosis and Anticoagulation Program are often seen as inpatients. Outpatient treatment and follow-up care are provided through our hematology clinic. For certain appointments and procedures, your child may also receive care at one of our satellite offices.
Your child’s treatment team will determine a specific care plan based on several factors, but it’s likely that she will receive anticoagulation medications (“blood thinners”). These medications prevent the clot from growing, decrease the risk of its breaking apart and causing further complications and help heal the blood vessel. Your child may need to continue taking these medications for several months after initial treatment.
Examples of anticoagulation medication your child’s physician may prescribe include:
Other treatments may include wearing compression stockings, remaining active and applying heat to reduce the swelling and pain caused by the clot.
We have a number of resources at Dana-Farber/Boston Children’s to help you and your family through this time.
Patient education: From the first visit through follow-up care, our nurses will be on hand to walk you through your child’s treatment and help answer any questions you may have. They also will reach out to you by phone, continuing the care and support you received while at Dana-Farber/Boston Children’s.
Parent to parent: Want to talk with someone whose child has been treated for thrombosis? We can often put you in touch with other families who have been through the same experience that you and your child are facing, and can share their experience.
Faith-based support: If you are in need of spiritual support, we will help connect you with the chaplaincy at Boston Children's Hospital. Our program includes nearly a dozen clergy representing Episcopal, Jewish, Lutheran, Muslim, Roman Catholic, Unitarian and United Church of Christ traditions who will listen to you, pray with you and help you observe your own faith practices during your hospital experience.
Social work and mental health professionals: Our social workers and mental health clinicians have helped many other families in your situation. We can offer counseling and assistance with issues such as coping with your child’s diagnosis, stresses relating to coping with illness and dealing with financial difficulties.
On our For Patients and Families site, you can read all you need to know about:
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”