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There are many ways you can help children and their families get the care they need.
For many children, surgery to “untether” the spinal cord is the only treatment for tethered spinal cord. There are several types of surgery, depending on the cause of the tethering and how much tissue is affected.
Your neurosurgeon can provide you and your family with the most specific and detailed recommendations for your child's surgical treatment.
Tethered spinal cord can't be treated with medication, but it can help manage the some symptoms of tethered spinal cord. Your child’s doctor may prescribe:
The type of follow-up care your child will need depends on his or her surgery and the extent of the tethering. In most cases the neurosurgeon will follow your child’s progress with yearly exams to make sure the spinal cord does not become tethered again.
If your child had any nerve damage before surgery, he or she may continue to have problems with bladder or bowel control, pain or weakness in the legs or feet, or trouble standing and walking. Children with these problems may benefit from support services such as physical therapy or occupational therapy.
Our experts in the Boston Children's Hospital Tethered Spinal Cord Program have years of experience treating these disorders, using minimally- invasive techniques whenever possible. We’re always available to answer questions and address any concerns you may have.
You can learn more about tethered spinal cord on the following websites:
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”