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Tetralogy of Fallot (TOF) with pulmonary atresia is a more severe form of TOF, a type of heart defect. It’s a congenital condition, which means it’s something a baby is born with.
Babies who have TOF with pulmonary atresia have five heart abnormalities:
TOF with pulmonary atresia is usually diagnosed shortly after birth. The most common symptom is a bluish tint to the skin, lips and nail beds, called cyanosis.
Babies born with TOF with pulmonary atresia need surgery to correct the problem, usually before 6 months of age. The surgery brings all the pulmonary arteries together so a connection can be created between the arteries and the right ventricle. Your child may need more than one operation, sometimes over a period of months or years.
Our team at the Boston Children’s Hospital Heart Center treats some of the most complex pediatric heart conditions in the world, including TOF with pulmonary atresia. Our overall success rates among the highest in the nation among large pediatric cardiac centers.
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”