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If your infant or child has been diagnosed with tetralogy of Fallot with pulmonary atresia (also known as ToF/PA or tet-atresia), an understanding of the condition will help you to cope with this rare and complex combination of congenital (present at birth) heart defects. While very serious, ToF/PA is treatable through surgery at Children’s Hospital Boston, and recent surgical and imaging advances have greatly improved your child’s outlook for recovery.
Right ventricular (RV) view of tetralogy of Fallot associated with pulmonary atresia. There is atresia of the right ventricular outflow tract and hypoplasia of the pulmonary arteries (PA). The aortic valve (AoV) is visible through the ventricular septal defect (VSD). The tricuspid valve (TV) is normal. A right aortic (Ao) arch is present in approximately 25% of patients. The proximal segments of two aortopulmonary collateral arteries are shown.
How Boston Children’s Hospital approaches tetralogy of Fallot with pulmonary atresia
Our team at Children’s Heart Center understands how distressing a diagnosis of tetralogy of Fallot with pulmonary atresia can be for parents. You can have peace of mind knowing that our surgeons treat some of the most complex pediatric heart conditions in the world, with overall success rates among the highest in the nation among large pediatric cardiac centers.
We have found that the following elements provide the best possible outcomes for patients with ToF:
Tetralogy of Fallot with Pulmonary Atresia: Reviewed by Thomas Kulik, MD
© Children’s Hospital Boston, 2011
Children’s history of heart care innovation
In 1938, Children’s cardiac surgeon Robert Gross, MD, performed the world’s first successful surgery to correct a child’s heart defect. Since that time, we have gained recognition around the globe for our leadership in pediatric cardiology, and continue to make critical advances in the field.
Children’s a world leader in pediatric research
Consistently ranked among the top pediatric hospitals in the United States, Children’s is home to the world’s most extensive pediatric hospital research enterprise; and we partner with elite health care and biotech organizations around the globe. But as specialists in innovative, family-centered care, our physicians never forget that your child is precious, and not just a patient.
The future of pediatrics will be forged by thinking differently, breaking paradigms and joining together in a shared vision of tackling the toughest challenges before us.”