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How is Sturge-Weber syndrome treated?
Sturge-Weber is a lifelong condition that can't be cured. However, early diagnosis and treatment of symptoms by a team of specialists can limit and prevent complications and improve your child's quality of life.
If your child has Sturge-Weber but does not have glaucoma, she should be followed regularly for the development of glaucoma and also amblyopia (also called “lazy eye”).
When is neurosurgery an option?
Neurosurgery is recommended when your child experiences chronic, severe seizures that continue despite pharmacological treatment. The surgery involves removing all or almost all of one side of the brain where the seizures originate.
Is the surgery safe?
We've performed this procedure many times at Children's with excellent outcomes. In many cases, the children are seizure-free and no longer depend on multiple medications. Because a child's brain is "plastic," the remaining portion is able to overtake most of the functions of the missing side. Partial paralysis on the side of the body opposite the removed portion is common. It is important to note that surgery is recommended for only a small subset of patients and is not necessary for most cases of Sturge-Weber syndrome.
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”