Stickler Syndrome Pediatric Research and Clinical Trials

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Research & Innovation

Multidisciplinary team, innovative care

Stickler syndrome is a complex condition, and no one specialist is equipped to treat your child for all his symptoms.

That’s why at Children’s Hospital Boston, we have an innovative multidisciplinary approach to treating children with Stickler syndrome.

Your child’s care team may include physicians from several disciplines, such as ophthalmology, audiology, plastic surgery, genetics, orthopedics and cardiology who have experience treating kids with the varied symptoms of Stickler syndrome.

We’re also continually involved in research with physicians and researchers in other institutions in an attempt to provide the most up-to-date and effective care for children with Stickler syndrome.

New treatment for mitral valve prolapse
Pedro del Nido, MD, chief of Cardiac Surgery, and his colleagues at Children’s are developing surgical instruments to enable beating heart surgical repair of mitral valve prolapse. These specialized devices will allow minimally invasive repairs inside the beating heart that are not currently possible. Read about these exciting developments.

We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”
- Sandra L. Fenwick, President and CEO

Boston Children's Hospital
300 Longwood Avenue, Boston, MA 02115
For Patients: 617-355-6000
For Referring Providers: 844-BCH-PEDS | 844-224-7337