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Boston Children's has launched the world's 1st program dedicated to offering hand transplants to children who qualify.
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There are many ways you can help children and their families get the care they need.
Spinal muscular atrophy (SMA) is sometimes difficult to diagnose, as symptoms can resemble other conditions or medical problems. Doctors usually diagnose SMA after a child has muscle weakness and decreased muscle tone.
If your clinician suspects SMA, he or she may use the following tests to diagnose the condition:
Treatment of SMA consists mainly of managing the symptoms, providing respiratory support as needed and preventing disease complications. Recently, however, discovery of the genetic cause of SMA has led to the development of a drug called nusinersen (brand name Spinraza). The drug, which will become available starting in 2017, has been shown in clinical trials to improve some children’s motor function. Read more.
The Spinal Muscular Atrophy Clinic at Boston Children’s brings together a team of specialists who are experienced in caring for children with SMA.
We hold a dedicated SMA clinic once a month so that your child can receive all of his or her SMA-related care in a single visit. This approach means that our various specialists can all work closely with your family to make sure your child’s care is well coordinated.
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”