Stickler Syndrome Pediatric Research and Clinical Trials

Research & Innovation

Multidisciplinary team, innovative care

Stickler syndrome is a complex condition, and no one specialist is equipped to treat your child for all his symptoms.

That’s why at Children’s Hospital Boston, we have an innovative multidisciplinary approach to treating children with Stickler syndrome.

Your child’s care team may include physicians from several disciplines, such as ophthalmology, audiology, plastic surgery, genetics, orthopedics and cardiology who have experience treating kids with the varied symptoms of Stickler syndrome.

We’re also continually involved in research with physicians and researchers in other institutions in an attempt to provide the most up-to-date and effective care for children with Stickler syndrome.

New treatment for mitral valve prolapse
Pedro del Nido, MD, chief of Cardiac Surgery, and his colleagues at Children’s are developing surgical instruments to enable beating heart surgical repair of mitral valve prolapse. These specialized devices will allow minimally invasive repairs inside the beating heart that are not currently possible. Read about these exciting developments.