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There are many ways you can help children and their families get the care they need.
The Heart Center at Boston Children's is the largest pediatric heart program in the United States. Our staff of more than 80 pediatric cardiac specialists cares for thousands of children and adults with congenital and acquired heart defects each year, from simple to complex cases. We have experience treating rare heart problems?with success rates that are among the best in the world.
Having identified your child's heart condition, Boston Children's Hospital can begin treating him.
Mild pulmonary stenosis generally does not require treatment. Moderate or severe stenosis is usually managed by cardiac catheterization (balloon dilation or valvuloplasty), in which:
Pulmonary valve stenosis can also be repaired by open heart surgery, though this is less common. The vast majority of abnormal pulmonary valves in infants and children are repaired through cardiac catheterization, usually on a non-emergency, scheduled basis.
Some infants who have severe pulmonary valve stenosis will need more emergent procedures and care in Boston Children's Cardiac Intensive Care Unit (CICU) prior to treatment.
Depending on the severity and variations of the defect, repair options include:
Boston Children's has pioneered interventional catheterization for many congenital heart defects.
Most children will live healthy lives with normal growth, no restrictions on exercise and activities, and for females, no risks associated with pregnancy later in life.
Most people who've had congenital heart disease repair will have an ongoing relationship with their cardiologist, since they'll always be at some risk for arrhythmias (abnormal heart rhythms), infections and other problems. Your child's cardiologist will help you create a long-term care program as your baby matures into childhood, the teen years and even adulthood.
A small percentage of repaired pulmonary valves will have leakage and calcifications from the repaired valve. Patients who develop symptoms later in life can be candidates for re-intervention or valve replacement.
At Boston Children's, we understand that a hospital visit can be difficult, and sometimes overwhelming. So, we offer many amenities to make your child's—and your own—hospital experience as pleasant as possible. Visit The Center for Families for all you need to know about:
In particular, we understand that you may have a lot of questions if your child is diagnosed with pulmonary valve stenosis: How will it affect my child long term? What do we do next? We can connect you with a number of resources to help you and your family through this difficult time, including:
To find out more, visit the Family resources page of Boston Children's For Patients and Families website.
… that Boston Children's pioneered interventional catheterization for many congenital heart defects. Catheterization is often used at Boston Children's instead of open-heart surgery to treat congenital heart defects. We perform hundreds of cardiac catheterizations each year, and we train more specialists in performing the procedure than any other hospital in the United States.
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”