#1 Ranked Children’s Hospital by U.S. News & World Report
MyPatients provides referring primary care providers with secure access to their patients’ information.
Boston Children's has launched the world's 1st program dedicated to offering hand transplants to children who qualify.
Innovation insider is a semi-monthly e-newsletter analyzes innovations at Boston Children’s, other academic medical centers and from industry.
Read the latest blog by a Boston Children's doctor, clinician or staff member.
There are many ways you can help children and their families get the care they need.
What are the different types of polycystic kidney disease (PKD)?
There are three major types of PKD:
Autosomal dominant PKD (inherited)
This is the most common inherited form of polycystic kidney disease, accounting for about 90 percent of all PKD cases.
"Autosomal dominant" means that if one parent has the disease, there is a 50 percent change that the disease will pass to your child, and that both girls and boys are equally affected.
In 25 percent of cases, there is no family history of PKD. You would not be at increased risk of having additional children with PKD, but your child with PKD would have a 50/50 chance to pass the gene on to her children.
Autosomal dominant PKD is often called the adult polycystic kidney disease.
What are the symptoms of autosomal dominant PKD?
Symptoms usually develop between the ages of 30 and 40 (but they can begin as early as childhood), and may include:
Autosomal dominant PKD may occur with other conditions including:
Autosomal recessive PKD (inherited)
What are the symptoms of autosomal recessive PKD?
Symptoms of autosomal recessive PKD can begin before birth. In most cases, the earlier the onset, the more severe the outcome. There are four types of autosomal recessive PKD, depending upon how old your child is when she begins experiencing symptoms:
Symptoms of autosomal recessive PKD your child may experience include:
Children born with autosomal recessive PKD may develop kidney failure within a few years and often experience the following:
The disease also usually affects the liver, spleen, and pancreas, resulting in low blood cell counts, varicose veins, and hemorrhoids.
Acquired cystic kidney disease or ACKD (non-inherited)
Acquired cystic kidney disease (ACKD) may develop in association with long-term kidney problems, especially if your child has kidney failure and has been on dialysis for a long time. Therefore, it tends to occur later in life, and is an acquired, not inherited, form of PKD.
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”