Support & Resources for IBD

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Contact the Inflammatory Bowel Disease Center

  • 1-617-355-6058
  • International: +01-617-355-5209

It's important to remember that while Crohn's disease can feel very isolating, many children and their families have been down this path before. We've helped them, and we can help you, too. There are lots of resources available for your family – within Children's, in the outside community and online. These include:

Patient education: From the very first visit, our nurses will be on hand to walk you through your child's treatment and help answer any questions you may have. And they'll also reach out to you by phone, continuing the care and support you received while at Children's.

Parent-to-parent connections: Want to talk with someone whose child has an IBD? We can put you in touch with other families who have been through similar experiences and can share their experience. In fact, the Boston area IBD support group meets right here at Children's.

Faith-based support: If you are in need of spiritual support, we'll help connect you with the Children's chaplaincy. Our program includes nearly a dozen clergy representing Episcopal, Jewish, Lutheran, Muslim, Roman Catholic, Unitarian and United Church of Christ traditions who will listen to you, pray with you and help you observe your own faith practices during your child's hospitalization.

Social work: Our IBD social worker can help you and your family:

  • adjust to the initial diagnosis
  • learn how to navigate everyday life with IBD
  • access community groups and other support available to your and your family

On our For Patients and Families site, you can read all you need to know about:

  • getting to Children's
  • accommodations
  • navigating the hospital experience
  • resources that are available for your family

What other resources might my family look at for more information on inflammatory bowel disease?

The Crohn's and Colitis Foundation of America (CCFA) is an organization dedicated to improving the lives of people with IBD and find a cure for these diseases.

Your Child with Inflammatory Bowel Disease: A Family Guide for Caregivers
Co-edited by Athos Bousvaros, MD, MPH, associate director of the Inflammatory Bowel Disease Program here at Children's, Your Child with Inflammatory Bowel Disease is a comprehensive and accessible book that talks about all aspects of having a child with IBD.

We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”
- Sandra L. Fenwick, President and CEO

Boston Children's Hospital 300 Longwood Avenue, Boston, MA 02115 617-355-6000 | 800-355-7944