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There are many ways you can help children and their families get the care they need.
The Boston Children’s IBD Center is one of the most authoritative programs in the world on Very Early Onset IBD, also called VEO-IBD.
The center’s director, Scott Snapper, MD, is also a founding member and principal investigator for the international VEO-IBD Consortium, a global network of pediatric gastroenterologists and scientists working to unravel the molecular basis for VEO-IBD and develop better treatments.
Infants and young children (typically under 6) with VEO-IBD do not respond to typical treatments for IBD, often showing resistance to standard medical therapy. They require targeted treatment from a team with real experience working with infants and children with this condition.
What you need to know about VEO-IBD:
Treating VEO-IBD or infantile IBD depends on the specific underlying genetic mutation, which can be easily determined with a blood test.
Scientists around the world are actively studying treatment options for these children, such as ways to use stem cell transplantation.
In other cases, the following treatment options have proven effective:
The Boston Children’s IBD Center is involved in pioneering research to discover the cause and a cure for VEO-IBD. In children under 6, VEO-IBD and infantile IBD tend to be associated with key gene mutations researchers have already identified.
Patients who undergo treatment at Boston Children’s have access to the latest clinical trials and work with a team of specialists ahead of the latest advancements in understanding and curing this disease.
Read more about IBD research.
For more information, appointments or a second opinion, please call the Boston Children’s IBD Center at 617-355-6058 or request an appointment online.
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”