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There are many ways you can help children and their families get the care they need.
Because Parry-Romberg syndrome may involve the lip, nose, mouth and ears, it can affect a child’s hearing, feeding, speech and dental functions. At Boston Children’s Hospital, our dedicated and knowledgeable team of specialists from several disciplines provides you and your child with the care and expertise necessary to treat this rare and complex condition.
Treatment typically involves surgery. The Cleft and Craniofacial Center at Boston Children’s is one of the largest and most experienced pediatric plastic and oral surgery centers anywhere in the world.
Learn more about our approach to craniofacial care.
Our world-renowned surgeons at Boston Children’s hospital perform very precise, complex reconstructive surgeries to treat Parry-Romberg. These surgeries are diverse, but not curative. Our surgeons usually recommend postponing surgery until the condition has stopped getting worse, and has reached an inactive phase. This allows for the best treatment and reconstruction. The surgery (or surgeries) range across a large spectrum, but may include:
Our surgeons will discuss specific options with you and your child in order to personally tailor the treatment. Since every patient’s case is unique, the surgical approach may vary quite significantly to treat your child’s condition.
For an appointment with the Cleft and Craniofacial Center, more information or to obtain a second opinion for your child, please call us at 617-355-6309 or email firstname.lastname@example.org.
For families residing outside of the United States, please call Boston Children's International Health Services at +01-617-355-5209.
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”