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Boston Children's has launched the world's 1st program dedicated to offering hand transplants to children who qualify.
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Parry-Romberg syndrome, also call Romberg syndrome or hemifacial atrophy, is a condition where the tissue of one side of the face gradually wastes away. Over time, the soft tissue (muscle and fat) gradually shrinks, the facial bones may change, and the skin may become thin. The severity of this atrophy can vary widely between patients, ranging from mild to severe. Some children and adults with Parry-Romberg syndrome also have headaches, and seizures can also infrequently happen. The signs of Romberg syndrome overlap with another condition called "linear scleroderma" and the line between the two is not always clear. The cause of Parry-Romberg syndrome is not known.
Parry-Romberg syndrome is thought to affect roughly one in 250,000 people, but the true incidence is not known because the condition is often misdiagnosed.
Families seeking the very best care for their child come to the Craniofacial Program at Boston Children’s for our:
For an appointment with the Cleft and Craniofacial Center, more information or to obtain a second opinion for your child, please call us at 617-355-6309 or email firstname.lastname@example.org.
For families residing outside of the United States, please call Boston Children's International Health Services at +01-617-355-5209.
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”