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There are many ways you can help children and their families get the care they need.
Diagnosing Parkes Weber syndrome (PWS) can be difficult for many physicians simply because it’s such a rare condition. The specialists at the Vascular Anomalies Center at Children’s Hospital Boston can easily identify PWS — and begin treatment to help manage your child’s symptoms.
How is PWS diagnosed? Doctors can sometimes see evidence of PWS in a prenatal ultrasound and the capillary malformation (sometimes called a “port-wine stain”) is almost always apparent when your child is born. If your child is older and you believe he has PWS, we’ll start with a complete medical history and a thorough physical exam. In many cases, that initial exam gives us enough information to diagnose PWS. If there’s any doubt, your doctor may recommend one or more of the following imaging tests, which can help determine the correct diagnosis and the appropriate next steps in treatment:
After we complete all necessary tests, our experts meet to review and discuss what they have learned about your child's condition. Then we will meet with you and your family to discuss the results and outline the best treatment options.
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”