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There are many ways you can help children and their families get the care they need.
"The vast majority of patients with significant pulmonary valve stenosis are having valve dilation in the catheterization lab, precluding the need for surgery. We are fortunate to have excellent catheterizers with high success and safety ratings, as well."
--Susan Saleeb, MD, Assistant in Cardiology, Boston Children's Hospital
Audrey Marshall, MD, is the director of Invasive Cardiology at Boston Children's Hospital.
If your infant or child has been diagnosed with pulmonary valve stenosis, a basic understanding of the condition will help you to cope with this congenital (present at birth) heart defect.
Pulmonary stenosis is a narrowing of the pulmonary valve, which normally lets blood flow from the right ventricle into the lungs.
The condition is congenital (present at birth)—and is the second most common congenital heart defect (5 to 10 percent of all cases).
Severe stenosis in newborns causes signs and symptoms of:
Symptoms in childhood are rare and may include:
The experienced heart specialists in Boston Children’s Catheterization Lab, Congenital Heart Valve Program and Cardiac Surgery Department understand how distressing the diagnosis of pulmonary stenosis can be for parents. You can have peace of mind knowing that our specialists treat some of the most complex pediatric heart conditions in the world, with overall success rates approaching 98 percent—among the highest in the nation.
We use the following elements to provide the best possible outcomes for PVS:
At Boston Children’s, we provide families of children with PVS with a wealth of information, resources, programs and support—before, during and after your child’s treatment. With our compassionate, family-centered approach, you and your child are in the best possible hands.
Visit Heart and Blood Vessels for information on how the normal heart works.
For visual and audio information on some congenital heart defects, visit Boston Children’s Cardiovascular Multimedia Library.
Boston Children’s Cardiac Neurodevelopment Program
Children who’ve had surgery or other life-saving interventions for heart problems as infants are at greater risk of neurodevelopmental delays and difficulties. By school age, they tend to have more academic, behavioral and coordination issues than other children. Boston Children’s Cardiac Neurodevelopment Program—one of the few of its kind in the United States—provides expert screening, evaluation and care for infants, children and teenagers with congenital heart disease who are at risk for neurodevelopmental problems. Care begins soon after your child’s first cardiac procedure, and continues as your child grows to make sure she’s hitting her developmental milestones.
Pulmonary (valve) stenosis (PVS, PS): Reviewed by Susan F. Saleeb, MD
© Boston Children's Hospital; posted in 2012
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