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Boston Children's has launched the world's 1st program dedicated to offering hand transplants to children who qualify.
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There are many ways you can help children and their families get the care they need.
It's entirely natural that you might be concerned, right now, about your child's health; a diagnosis of neurogenic bladder can be frightening. But you can rest assured that at Boston Children's Hospital, your child is in good hands.
While neurogenic bladder can't be cured, necessarily, it can most definitely be managed. Most children will receive medication and intermittent catheterization. Few of them need major reconstructive surgery.
Many parents worry that frequent catheterization can lead to constant infection (and that their child will always have a urinary tract infection). However, while intermittent catheterization is associated with a higher risk of infection, these risks can be regulated with medication and/ or prevented with antibiotics.
Generally speaking, changes can occur over the lifetime of your child, and that's why we're committed to following him throughout his childhood, adolescence and young adulthood. We will monitor your child closely: Sometimes things change for the better and sometimes for the worse. Unfortunately, we don't have a good way of predicting when that's going to happen. What we do know is that in the past, spina bifida almost always led to a life of incontinence; this is no longer the case.
How exactly is neurogenic bladder treated?
Your child's treatment for neurogenic bladder may include:
In caring for patients affected by neurogenic bladder, what sets Children's apart are innovations in two key areas:
Using special techniques, our doctors can grow enough of the patient's own bladder tissue to enlarge or replace the bladder.
The world's first recipients of tissue augments to enlarge the bladder were at Children's.
In conjunction with the Harvard Stem Cell Institute, we are testing the use of embryonic stem cells and induced pluripotent stem (iPS) cells to augment bladder tissue, as well as the use of novel materials, like silk.
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”