#1 Ranked Children’s Hospital by U.S. News & World Report
MyPatients provides referring primary care providers with secure access to their patients’ information.
Boston Children's has launched the world's 1st program dedicated to offering hand transplants to children who qualify.
Innovation insider is a semi-monthly e-newsletter analyzes innovations at Boston Children’s, other academic medical centers and from industry.
Read the latest blog by a Boston Children's doctor, clinician or staff member.
There are many ways you can help children and their families get the care they need.
Receiving a diagnosis of neurofibromatosis type 2 (NF2) can be overwhelming, both for young adults and their families. That's why surveillance and monitoring remain a key part of treatment in the Neurofibromatosis Programhere at Boston Children's Hospital. We follow individuals closely with hearing and vision evaluations so we can detect changes in symptoms right away. This early intervention enables us to deliver the most effective and efficient treatments possible.
How is NF2 treated?
Since a cure for NF2 has not yet been found, treatment focuses on managing symptoms and complications. Experts here at Children's will customize a comprehensive treatment plan based on each patient's unique needs.
A person with NF2 might need one or more of the following treatment methods in order to manage symptoms:
How is hearing loss treated?
In most cases, the vestibular schwannomas that grow on the auditory nerve will need to be removed surgically.
Individuals who experience hearing loss or impairment have the following non-surgical treatment options:
What does long-term follow-up care involve?
After an adolescent or young adult has been diagnosed with NF2, the doctors in our Neurofibromatosis Program will see her at least once per year and arrange more frequent follow-up visits if necessary.
What makes Boston Children's approach unique?
In our NF program, the first step in the treatment process is a comprehensive evaluation that includes a physical exam as well as an extensive review of the patient's medical, developmental and family histories. This evaluation will confirm or establish the correct diagnosis of NF2.
Genetic counselors are also available to explain the possible genetic and hereditary implication of NF2 for affected individuals and their family members.
The most unique feature of our program is that it brings together physicians from various departments throughout Boston Children's who have many years of experience diagnosing and treating NF. This multidisciplinary approach allows us to provide you with direct connections to experts specializing in:
What can I do at home to help my child?
The most important things a parent can do for a child who has NF2 is make sure that he is comfortable and safe in his environment, and encourage him to participate in physical therapy and mobility training. Sympathy and emotional support are also invaluable parts of the treatment process.
It's normal and acceptable to go through a range of emotions when your child is waiting for or has received a diagnosis of NF2. Remember that there's lots of support out there, and Boston Children's is here to help.
In our Neurofibromatosis Program, we offer support to adolescents and their families, both online and out in the community.
Our program works to meet the medical and emotional needs of the child as well as the family's needs for support and education. We accomplish this by providing psychosocial counseling and educational materials that address issues related to NF.
Some sources of online support include:
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”