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There are many ways you can help children and their families get the care they need.
Before learning more about metopic synostosis, it’s helpful to understand the anatomy of a baby’s skull.
When a child has metopic synostosis:
Some children have very mild cases of metopic synostosis that do not require specific treatment. In more serious cases, however, the condition can cause:
Surgery has proven to be a beneficial treatment for children whose metopic synostosis necessitates medical intervention.
What causes metopic synostosis?
In most children, metopic synostosis happens without any identifiable reason.
Sometimes, however, metopic synostosis occurs as a component of a rare genetic syndrome. The following disorders have been linked to metopic synostosis:
What are the symptoms of metopic synostosis?
Children with metopic synostosis have visible symptoms that include one or all of the following:
Learn how Children’s helped Shannon, born with craniosynostosis, and her family.
Q: Will my child be OK?
A: The severity of metopic synostosis can vary widely, from mild and barely noticeable to serious and with several complications.
If your child has mild metopic synostosis or just a metopic ridge, he may have no symptoms beyond a visible ridge in the middle of his forehead, and might not need any medical treatment.
However, more serious cases of metopic synostosis can cause complications with:
Your child’s treating physician will explain the extent of his condition and make specific recommendations for best next steps.
Q: At what age does metopic synostosis tend to develop?
A: Metopic synostosis is almost always noticeable at birth, but some children—especially those with very mild symptoms—might not be diagnosed until later in infancy.
Q: Is my baby going to need surgery?
A: That depends on his symptoms and the degree of problems they are causing.
For example, if he only has a noticeable ridge on his forehead but no other symptoms, he probably won’t need any medical treatment at all. But if he has more extensive difficulties, he may need surgery to prevent further problems with his brain and skull growth.
Here at Boston Children’s Hospital, our clinicians have extensive experience performing surgeries for metopic synostosis and all types of craniosynostosis. The vast majority of children who have these procedures go on to lead normal, active lives.
You and your family play an essential role in your child’s treatment for metopic synostosis. It’s important that you share your observations and ideas with your child’s treating physician, and that you have all the information you need to fully understand the treatment team’s explanations and recommendations.
You’ve probably thought of many questions to ask about your child’s metopic synostosis. It’s often very helpful to jot down your thoughts and questions ahead of time and bring them with you, along with a notebook, to your child’s appointment. That way, you’ll have all of your questions in front of you when you meet with your child’s treating clinician and can make notes to take home with you.
Some questions to ask your doctor might include:
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