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There are many ways you can help children and their families get the care they need.
At Boston Children's Hospital, our Hand and Orthopedic Upper Extremity Program provides comprehensive care for patients with Madelung deformity – including evaluation, diagnosis, consultation, surgery and follow-up care.
Many kids and teens with Madelung have no pain or limitations in their daily activities. In these case, no surgery is necessary. Your child's doctor will probably recommend that you bring her in periodically to monitor the progression, if any, of the condition.
If your child has pain, trouble using the wrist, or progressive deformity, her doctor may recommend surgical treatment.
Surgical approaches can include corrective soft tissue and bony procedures. In general, the goals of surgery are to reposition and stabilize your child's wrist so she can move it without pain and to prevent the deformity from worsening.
The type of surgery the doctor recommends depends on your child's age, degree of deformity, functional limitations and general health. Surgical approaches can include corrective soft tissue and bony procedures, such as:
• Physiolysis: releasing or correcting the growth plate abnormality of the radius
• Corrective osteotomy: cutting and realigning the end of the radius
• Ulnar-shortening osteotomy: shortening the ulna bone to level the wrist
• Darrach procedure: removing the part of the ulna that is protruding
We also may recommend a procedure called a wrist arthroscopy to evaluate and treat any cartilage injury within the wrist joint.
Complications are rare, but can occur, including:
• Nerve damage
• Incomplete correction (alignment) between the right and left sides.
• Recurrence of the condition
Most of the time after surgery the child’s bones heals, the deformity corrected, the pain improved, and the appearance of the wrists improves. But recurrence of the condition may occur, especially in younger children. Boston Children’s doctors use several treatment strategies to help minimize the risk of recurrence.
At Boston Children's Hospital, we understand that a hospital visit can be difficult, and sometimes overwhelming. So, we offer many amenities to make your child's, and your family's, hospital experience as pleasant as possible. Visit the Hale Family Center for Families or all you need to know about:
• Getting to Boston Children's
• Navigating the hospital experience
• Resources that are available for your family
In particular, we understand that you may have a lot of questions when your child is diagnosed with Madelung deformity. Boston Children's can connect you with extensive resources to help you and your family through this stressful time, including:
• Patient education: From doctor's appointments to physical therapy and recovery, our nurses and physical
therapists will be on hand to walk you through your child's treatment and help answer any questions you may
have—Why will my child need surgery? Are there non-surgical options? How long will her recovery take? How
should we manage home exercises and physical therapy? We'll help you coordinate and continue the care and
support your child received while at Boston Children's.
• Parent-to-parent: Want to talk with someone whose child has been treated for Madelung? We can often put you in
touch with other families who've been through the same process that you and your child are facing, and who will
share their experiences.
• Faith-based support: If you're in need of spiritual support, we'll connect you with the Boston Children's chaplaincy.
Our program includes nearly a dozen clergy— representing Protestant, Jewish, Muslim, Roman Catholic and other
faith traditions—who will listen to you, pray with you and help you observe your own faith practices during your
• Emotional support: Our social workers and mental health clinicians have helped many families in your situation.
We can offer counseling and assistance with issues such as coping with your child's diagnosis, stresses relating to
coping with illness and dealing with financial difficulties.
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”