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When we hear that someone has had, or is at risk for, a stroke, we tend to immediately picture an older person. “After all,” we may think, “a stroke is something our parents and grandparents might face — not our children.” Unfortunately, pediatric stroke is a very real risk for many kids with certain cerebrovascular disorders, including Moyamoya disease.
Moyamoya disease, which is also known as Moyamoya syndrome, is a rare but very serious condition in which the walls of the internal carotid arteries—the vessels that supply blood to important areas of the brain—become thickened and narrowed. This causes the flow of oxygen-rich blood to the child's brain to gradually slow down, and makes it more likely that a blood clot will form.
The detailed information on the following pages will help you gain a better understanding of Moyamoya disease, and will provide a clearer picture of what lies ahead.
Boston Children’s has a long and distinguished history of caring for children with complex diseases and disorders of the brain, spine and central nervous system. Experts in our Department of Neurosurgery are regarded as an international leaders in understanding and treating pediatric Moyamoya disease, and we have a specialized program devoted entirely to this rare but life-threatening disorder.
The only treatment for Moyamoya disease that’s proven to be effective in the long term is surgery. Boston Children's neurosurgeon R. Michael Scott, MD, has pioneered a surgical procedure called pial synangiosis that directly affixes a healthy donor artery to the affected area of a patient’s brain. In 1985, Scott performed the first of these surgeries on a child with Moyamoya disease. Over the past 25 years, he and Edward Smith, MD, director of Pediatric Cerebrovascular Surgery at Children’s, have used the pial synangiosis procedure to treat more than 400 patients with Moyamoya.
Watch a webcast of an actual pial synangiosis procedure here at Boston Children's.
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”