Kaposiform Hemangioendothelioma Pediatric Research and Clinical Trials

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Kaposiform hemangioendothelioma research & clinical trials

Physicians and researchers at Boston Children’s Vascular Anomalies Center have generated an extensive database of cases of vascular anomalies, including more than 250 cases of KHE. We are actively evaluating the best therapies for KHE and studying long- term outcomes after KHE. As our database grows, it will help shine more light on this rare and often misunderstood condition.

Consolidating knowledge about KHE treatment, side effects and outcomes in this database will help us treat children more effectively. Based on this database, we have recently published a paper on 107 children referred to the VAC, providing insight into unusual presentations of this rare disease.

In 2015 we opened a clinical trial comparing vincristine and sirolimus in patients with KHE complicated by KMP. This randomized, controlled, multicenter trial involving several institutions around the country will answer questions about which of these medications is a better treatment for KHE.

Kaposiform hemangioendothelioma: Reviewed by Cameron C. Trenor III, MD, © Boston Children's Hospital, 2016

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- Sandra L. Fenwick, President and CEO

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