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There are many ways you can help children and their families get the care they need.
At Boston Children's Hospital, a diagnosis of hypopituitarism is a starting point for long-term healing: Now that your child's condition has been positively identified, your child's doctor will begin the process of returning your child to good health. From your very first visit, you'll work closely with a team of professionals who are committed to supporting your entire family's journey through treatment.
Treating hypopituitarism depends both on its cause and on which hormones are missing. The goal of treatment is to restore normal levels of hormones. Treating the underlying condition that's causing your child's hypopituitarism often leads to a full recovery.
Since your child's body is unable to make some or all of these missing hormones, life-long hormone replacement therapy is necessary. Replacement therapy needs to be monitored and adjusted, but the extent of your child's pituitary deficiency will determine how often he will need to see his doctor.
While there are many potential side effects, researchers generally agree that hormone replacement therapy is safe and effective.
Coping and support
You may have a lot of questions when your child is diagnosed with hypopituitarism. We've tried to provide some answers to those questions on this site, but there are also a number of other resources to guide you and your family through diagnosis and treatment.
Patient education: From the first office visit, our nurses will be on hand to walk you through your child's treatment and help answer any questions you may have. They will also reach out to you by phone, continuing the care and support you received while at Children's.
Parent to parent: Want to talk with someone whose child has been treated for hypopituitarism? We can often put you in touch with other families who have been through the same treatments that you and your child are facing, and can share their experience .
Social work: Our social workers and mental health clinicians have helped many other families in your situation. We can offer counseling and assistance with issues such as stresses relating to hypopituitarism and dealing with financial difficulties.
On our For Patients and Families site, you can read all you need to know about:
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”