Treatment for Heterotaxy Syndrome

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At Boston Children’s, we consider you and your child integral parts of the care team. You and your care team will work together to customize a plan of care for your child.

What makes Boston Children's Hospital approach to treating heterotaxy syndrome different? 

Physicians and researchers at Boston Children’s combine a tradition of surgical excellence with innovative research. Our multidisciplinary team works together to treat patients with heterotaxy syndrome.  

Each patient requires specialized treatment because of the many types and combinations of heart defects in patients with heterotaxy syndromes. Also, combinations of problems within the heart and with the connections of the heart to the rest of the circulation may make repairs that restore heart and circulation function to normal complicated. At Boston Children’s, we have made “two ventricle” repairs for many of these patients that were previously treated as though they only had one ventricle.

How is heterotaxy syndrome treated?

Based on the findings of the tests listed in the “Tests” section, a treatment plan is created.  The nature of the procedure (or procedures) depends on the individual patient’s heart problems. Each patient may have one or a combination of several heart problems.

Surgery is generally required to address the abnormalities of the heart or other organs. Medications are also often required to treat symptoms such as heart failure. If the patient has a spleen that isn’t functioning properly, antibiotics and vaccinations are needed to guard against infection. 

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- Sandra L. Fenwick, President and CEO

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