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Heterotaxy syndrome is a rare condition in which the heart and/or organs in the abdomen are in abnormal places and may be formed incorrectly. The condition can affect the heart and lungs, and the organs in the abdomen, such as the stomach, intestines, liver and lungs.
There are two main forms of heterotaxy syndrome:
Patients with heterotaxy syndrome may require multiple surgeries to either fix defects or to redirect blood flow when defects cannot be fixed. All procedures require life-long follow-up with a cardiologist.
Our team at Boston Children’s Hospital treats some of the most complex pediatric heart conditions in the world, and our success rate is among the highest in the nation among large pediatric cardiac centers. Learn more about treatments for heterotaxy syndrome.
Heterotaxy syndrome: Reviewed by Puja Banka , MD, and John Mayer, MD
© Boston Children's Hospital; posted in 2012
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