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Boston Children's has launched the world's 1st program dedicated to offering hand transplants to children who qualify.
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There are many ways you can help children and their families get the care they need.
Specific treatment for a gliomatosis cerebri may include:
We should know more about the results of these tests soon. To date, no chemotherapy regimen has been shown to increase survival rates.
Unfortunately, surgery is not an option in the treatment of these tumors.
As with all pediatric cancers, care should be delivered at specialized centers where multidisciplinary teams can provide not only expert diagnostics and experienced medical, surgical and radiation oncologists, but also psychosocial support, neuro-psychological testing and specialized school plans, all delivered in a child- and family-sensitive and friendly environment.
Your child may experience side effects from radiation. Radiation often produces inflammation, which can temporarily make symptoms and dysfunctions worse. If your child experiences inflammation, steroids may be prescribed.
Many specialized brain tumor treatment centers have now added experts in complementary or alternative medicine (CAM). These treatments, including acupuncture/acupressure, therapeutic touch, massage, herbs and dietary recommendations, can also help to control pain and side effects of therapy. Talk to your child's physician about whether CAM might be a viable option of treatment.
The prognosis for gliomatosis cerebri remains poor.
Clinical trials and experimental therapies are available for patients with relapsed high-grade gliomas at specialized centers. Current trials include novel medications as well as new methods for the delivery of more traditional agents.
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”