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There are many ways you can help children and their families get the care they need.
The Metabolism Program at Boston Children's Hospital takes a comprehensive, multidisciplinary approach to testing for and treating children with galactosemia and other metabolic disorders.
How is galactosemia treated?
The only treatment for galactosemia is avoiding foods that contain lactose and galactose.
A physician and a dietitian who specializes in metabolic disorders can tell you what modified dietary plan your child will need to follow.
What foods should be avoided?
A person with galactosemia must avoid foods containing milk and all dairy products, such as:
Any foods or drugs which contain the following ingredients should also be avoided during infancy:
What foods are safe to eat?
A child can start eating solid foods at around 4 to 6 months of age. A child on a galactose-restricted diet can eat most foods containing protein, such as beef, poultry and eggs. They can also eat most types of fruits, vegetables, and grains.
Since children with galactosemia cannot consume milk products, their calcium levels may be too low. Taking calcium supplements every day will help ensure they receive enough calcium. Vitamin D supplements may be recommended in addition to calcium.
Your child's doctor will tell you what supplements to give your child and how much. Do not use any medication or supplement without checking first with the clinician on your child's medical team.
Different types of therapy can also be used to address your child's unique social, behavioral, communication and academic needs.
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”