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There are many ways you can help children and their families get the care they need.
An encephalocele can be treated surgically, ideally during infancy when the skull is still very flexible. The operation involves removing any nonfunctioning brain tissue and cerebrospinal fluid, moving functional brain tissue carefully back into the skull and relieving any fluid pressure in the head.
The location and size of the encephalocele will determine how much of the defect our surgeons can safely correct. Usually, large protrusions can be removed safely. A complete recovery is most likely when the bulging material consists of primarily cerebrospinal fluid. When a large amount of brain tissue is present in the encephalocele, there is a higher chance of complications during surgery.
The largest of its kind in the Northeast, our Craniofacial Program offers specialization in rare and complex disorders such as encephalocele. Our team includes some of the world’s most experienced neurosurgeons, plastic surgeons, oral and maxillofacial (face and jaw) specialists, dentistry professionals, psychologists and social workers—all working together to care for your child.
The Craniofacial Program was an early adopter of 3-D printing to help surgeons plan for especially tricky cases, making operations shorter and safer. Read more on our science blog and watch how 3-D printing recently guided another type of craniofacial operation.
During surgery, our doctors will:
The goals of treatment for encephalocele include:
For an appointment with the Cleft and Craniofacial Center, more information or to obtain a second opinion for your child, please call us at 617-355-6309 or email our program coordinator, email@example.com.
For families residing outside of the United States, please call Boston Children's International Health Services at +01-617-355-5209.
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”