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There are six major types of EDS. All types affect the joints and most affect the skin.
If you child has Ehlers Danlos syndrome, she has inherited at least one copy of an altered gene. Some types of the disorder result from a genetic defect that disrupts the baby's body's ability to make collagen, a primary component of connective tissue. This causes the child to have joint pain and other symptoms of the disorder.
The symptoms of EDS vary depending on the type of disorder, and can range from mild to life threatening. Some of the common symptoms include:
Some of the less common symptoms include:
People with EDS, especially the kyphoscoliosis type, are more prone to osteoporosis and eye problems. Other types may increase the risk of developing gum disease and mitral valve prolapse, a heart condition in which one of the valves in the heart does not close properly, which affects the flow of blood and the delivery of oxygen to throughout the child's body.
Children with EDS are encouraged to do non-weight bearing activities, such as swimming, which does not tax the joints. Repetitive activities, like weight lifting, are discouraged. Push-ups and other exercises that require pushing with the palm of the hand can cause fingers to hyper-extend and are therefore not recommended.
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”