#1 Ranked Children’s Hospital by U.S. News & World Report
MyPatients provides referring primary care providers with secure access to their patients’ information.
Boston Children's has launched the world's 1st program dedicated to offering hand transplants to children who qualify.
Innovation insider is a semi-monthly e-newsletter analyzes innovations at Boston Children’s, other academic medical centers and from industry.
Read the latest blog by a Boston Children's doctor, clinician or staff member.
There are many ways you can help children and their families get the care they need.
Having identified your child's heart condition, at Boston Children's Hospital we're able to begin the process of treating him, so that we may ultimately return him to good health.
Medication for milder cases. Most children who have a milder form of Ebstein's anomaly can be managed with medication to control:
Surgery for more severe cases. But if your child's condition is severe—causing low levels of oxygen in the blood (cyanosis) or arrhythmia—his situation will probably be urgent, and surgery will be needed.
Your baby will most likely be admitted to Boston Children's cardiac intensive care unit (CICU) once his symptoms become apparent. Initially, he may be placed on oxygen or a ventilator to help him breathe, and IV (intravenous) medications may be given to help his heart and lungs function more efficiently.
There are several surgical approaches to repairing your child's tricuspid valve, closing his patent foramen ovale (PFO), and repairing other defects (such as ASD) that are associated with Ebstein's anomaly. Surgical techniques include:
Radiofrequency catheter ablation treatment for arrhythmias. For children whose condition includes significant arrhythmias and heart beat irregularities that can't be fully controlled by medication, doctors can perform a catheterization intervention called radiofrequency catheter ablation to treat these heart arrhythmias.
In 1990, Boston Children's doctors performed the first pediatric non-surgical repair of a cardiac arrhythmia, using catheter ablation to correct a rhythm disorder called Wolff-Parkinson-White syndrome. So, today, Boston Children's experts can call on our more than three decades' worth of experience with this procedure.
After surgery, your child's cardiologist will offer recommendations for follow-up care, including:
As your baby recovers and grows, be sure to follow a regular program of well-baby/well-child checkups. Throughout his childhood, you can help your child—and the whole family—by making sure heeats a heart-healthy diet, exercises regularly, and as he grows into the teen years avoids smoking.
Surgical techniques for treating Ebstein's anomaly and its associated defects are continually being refined, and the long-term outlook is continually improving. Most children who've had surgery recover and grow normally.
Even so, your child will need periodic monitoring—and possibly medication—indefinitely, since he could be at some risk for abnormal heart rhythms (arrhythmias) and heart failure. In relatively few cases, patients who have had surgery for Ebstein's anomaly may need additional surgery.
Your child's cardiologist will help you create a long-term care program as your baby matures into childhood, the teen years and even adulthood. Most people who have had congenital heart disease repair will have an ongoing relationship with their cardiologist.
We'll prevent and treat any complications and will advise on daily-life issues, such as activity levels, nutrition and precautions related to pregnancy.
We understand that if your child is has Ebstein's anomaly, you'll have a lot of questions. How serious is this condition? Will surgery help my child? What's the long-term outlook? Boston Children's Hospital has a variety of resources at that may be helpful to your family:
To find out more, visit the Family resources page of Boston Children's For Patients and Families site.
You'll be comforted to know that Boston Children's pioneered the use of interventional catheterization for many congenital heart defects and is a leader in the use of this procedure.
The Heart Care Center at Boston Children's is one of the largest pediatric heart programs in the United States. Our staff of more than 80 pediatric cardiac specialists cares for thousands of children and adults with congenital and acquired heart defects each year, from simple to complex cases. We have experience treating rare heart problems—with results that are among the best in the world.
Back to top.
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”