Ehlers danlos syndrome in children

LIke ThisLIke ThisLIke ThisLIke ThisLIke This

Contact Us

Ehlers-Danlos Syndrome (EDS) is a group of rare genetic disorders that affect a person's connective tissue. Connective tissue consists of proteins, such as collagen, that provide elasticity and support to the joints, blood vessels and skin.

  • Ehlers-Danlos Syndrome occurs in 1 out of every 5,000 babies worldwide.
  • It's often misdiagnosed as fibromyalgia.
  • EDS affects males and females from all racial and ethnic backgrounds.
  • There is no known cure.
Boston Children’s is so much more than a hospital—it’s a community of researchers, clinicians, administrators, support staff, innovators, teachers, patients and families, all working together to make the impossible possible. ”
- Sandra L. Fenwick, President and CEO

Boston Children's Hospital
300 Longwood Avenue, Boston, MA 02115
For Patients: 617-355-6000
For Referring Providers: 844-BCH-PEDS | 844-224-7337

Close