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There are many ways you can help children and their families get the care they need.
As your child begins to feel better and gets back to her regular activities, there is a risk that she may choose not to take her meds. This is called “non-adherence” and may happen for several reasons:
Your teen may also:
Of course, it’s up to your teen to decide how much she feels comfortable sharing—that’s part of letting teens maintain their privacy and feelings of control. Let your teen know that while it may feel embarrassing at first, many teens find that telling their friends about their IBD strengthens their friendships: the friend is entrusted with the information, and the child with IBD feels that she can trust her friend.
How can I help my child with Crohn’s disease?
It’s always challenging for a family to deal with chronic disease, and IBD may raise issues of privacy and independence that feel especially emotional. This can strain communication between you and your teen. Remember that good communication includes talking and listening, and sometimes what a teen needs most is simply to feel understood.
Everyday living for teens with Crohn’s disease
Use these tips for living more comfortably with Crohn’s disease:
Good things to keep on hand if you have Crohn’s disease include:
Navigating college with Crohn’s disease
While starting college is always a time of new choices and challenges, many teens with IBD are already in the habit of making choices that are good for their health. Some things to consider:
Traveling with Crohn’s disease
You needn’t be denied the rewards of travel because of Crohn’s disease. Lots of people with IBD are able to manage their condition well enough to let them focus on their destination and not their disease.
Remember, we here at Boston Children’s Hospital are here to help. Please contact us with any questions you have.
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”