Crohn’s Disease Support & Resources for Children and Families

LIke ThisLIke ThisLIke ThisLIke ThisLIke This

Contact the Inflammatory Bowel Disease Center

  • 617-355-6058
  • International: +1-617-355-5209
  • Fax: 617-730-0254
Crohn's disease can feel very isolating. But it can help to remember that many children and their families have been down this path before—we've helped them, and we can help you too. There are lots of resources available for your family—within Boston Children's, in the outside community and online. These include:

Patient education: From the very first visit, our nurses will be on hand to walk you through your child's treatment and help answer any questions you may have. And they'll also reach out to you by phone, continuing the care and support you received while at Boston Children's.

Parent-to-parent connections: Want to talk with someone whose child has an IBD? We can put you in touch with other families who have been through similar experiences and can share their experience. In fact, the Boston area IBD support group meets right here at Boston Children's.

Faith-based support: If you are in need of spiritual support, we'll help connect you with the Boston Children's chaplaincy. Our program includes nearly a dozen clergy representing Episcopal, Jewish, Lutheran, Muslim, Roman Catholic, Unitarian and United Church of Christ traditions who will listen to you, pray with you and help you observe your own faith practices during your child's hospitalization.

One-on-one support and social work: Our IBD social worker can help you and your family:

  • adjust to the initial diagnosis
  • learn how to navigate everyday life with IBD
  • access community groups and other support available to you and your family

On our For Patients and Families site, here’s all you need to know about:

  • getting to Boston Children's
  • accommodations
  • navigating the hospital experience
  • resources that are available for your family

What other resources might my family look at for more information on Crohn’s disease?

The Crohn's and Colitis Foundation of America (CCFA)
is an organization dedicated to improving the lives of people with IBD and finding a cure for these diseases.

Growing up with Crohn’s Disease – What Every Family Should Know is a series of short videos that will help you learn more about Crohn’s disease.

Your Child with Inflammatory Bowel Disease: A Family Guide for Caregivers

Co-edited by Athos Bousvaros, MD, MPH, associate director of the Inflammatory Bowel Disease Program here at Children's, “Your Child with Inflammatory Bowel Disease” is a comprehensive and accessible book that talks about all aspects of having a child with IBD

Related Articles

“When your sick child isn't a child: my adult daughter gets the diagnosis of Crohn's disease”

“5 tips for heading off to college with IBD”

“6 tips for a new school year—with inflammatory bowel disease”

We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”
- Sandra L. Fenwick, President and CEO

Boston Children's Hospital 300 Longwood Avenue, Boston, MA 02115 617-355-6000 | 800-355-7944