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There are many ways you can help children and their families get the care they need.
Boston Children's Hospital has been a worldwide innovator in diagnosing and treating children with craniosynostosis for decades. Clinicians in our Departments of Neurosurgery and Plastic Surgery have extensive experience in treating children, adolescents and adults with all forms of the condition, and can even diagnose craniosynostosis in many cases.
And we always use minimally invasive techniques—medical and surgical procedures that use small incisions and miniaturized cameras and tools—whenever we can.
Most children with craniosynostosis will require surgical intervention.
Surgery for craniosynostosis:
Before the operation, your child's surgeon will:
During surgery, the surgeon and treatment team will:
Monitoring and follow-up
After surgery, your child:
When your child has craniosynostosis, your family may have many concerns and questions. Not only are you focused on meeting all of your child's medical needs; you are also grappling with a significant emotional and psychological toll that can affect every member of the family.
In addition to the clinical information offered on this page, Boston Children's has several other resources designed to give your family comfort, support and guidance:
Patient and family resources at Boston Children's
Boston Children's Behavioral Medicine Clinic helps children who are being treated on an outpatient basis at the hospital—as well as their families—understand and cope with their feelings about:
The Experience Journal was designed by Boston Children's psychiatrist-in-chief David DeMaso, MD and members of his team. This online collection features thoughts, reflections and advice from kids and caregivers about living with medical conditions and going through treatment.
Boston Children's Psychiatry Consultation Service is comprised of expert and compassionate pediatric psychologists, psychiatrists, social workers and other mental health professionals who understand the unique circumstances of hospitalized children and their families. The team provides several services, including:
Boston Children's Center for Families is dedicated to helping families locate the information and resources they need to better understand their child's particular condition and take part in their care. All patients, families and health professionals are welcome to use the Center's services at no extra cost. The center is open Monday through Friday from 8 a.m. to 7 p.m., and on Saturdays from 9 a.m. to 1 p.m. Please call 617-355-6279 for more information.
The Boston Children's chaplaincy is a source of spiritual support for parents and family members. Our program includes nearly a dozen clergy members—representing Episcopal, Jewish, Lutheran, Muslim, Roman Catholic, Unitarian and United Church of Christ traditions—who will listen to you, pray with you and help you observe your own faith practices during your child's treatment.
Boston Children's International Center is a dedicated resource for patients and families from countries outside the United States. The center can provide assistance with everything from reviewing medical records to setting up appointments and locating lodging. Contact the center by phone at 01-617-355-5209 or via e-mail at email@example.com.
Please note that neither Boston Children's Hospital nor the Craniofacial Anomalies Program at Children's unreservedly endorse all of the information found at the sites listed below. These links are provided as a resource.
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”