Craniosynostosis | Frequently Asked Questions

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Will my child be OK?

The severity of craniosynostosis can vary widely, depending on the type of craniosynostosis your child has and how many sutures are affected. The good news is that with early detection and prompt treatment, most children don’t have any significant long-term problems.

How common is craniosynostosis?

This condition affects about one in every 2,500 children. 

At what age is craniosynostosis usually diagnosed?

Craniosynostosis is almost always noticeable at birth, although mild conditions may not be found until later in infancy or childhood. Physicians can sometimes detect craniosynostosis during pregnancy, but this is not common.

Will my child need surgery?

Craniosynostosis is often a progressive condition. This means that if it is not treated, the symptoms may get worse over time. As a result, most children with craniosynostosis need surgery to prevent problems with brain and skull growth and to correct skull deformities. Your clinician can help you decide if surgery is the right treatment for your child. 

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