#1 Ranked Children’s Hospital by U.S. News & World Report
MyPatients provides referring primary care providers with secure access to their patients’ information.
Boston Children's has launched the world's 1st program dedicated to offering hand transplants to children who qualify.
Innovation insider is a semi-monthly e-newsletter analyzes innovations at Boston Children’s, other academic medical centers and from industry.
Read the latest blog by a Boston Children's doctor, clinician or staff member.
There are many ways you can help children and their families get the care they need.
How is congenital high airway obstruction treated?
The first step in management may be further testing so that doctors can learn more about your baby's condition. There is a wide range of other congenital problems that seem to coincide with laryngeal atresia, such as abnormalities of the vertebrae, trachea, urinary tract and heart.
These studies can include:
Will I have to have surgery?
Probably. All fetuses with advanced CHAOS require surgery before birth since there is a significantly high risk of death at birth if no intervention takes place.
The operation is usually performed as the baby is delivered by a procedure called ex utero intrapartum treatment (EXIT). For this procedure, the baby must be delivered at a hospital that specializes in EXIT like Children's.
Doctors perform a Cesarean section while the mother is under deep general anesthesia.
This surgery may be performed as early as 24 weeks gestation, depending on how severe the problem is. To secure the airway, surgeons will perform one or a combination of the following procedures depending on what's causing the obstruction and how severe it is:
If the airway cannot be secured in time, the baby may be placed onto ECMO (heart-lung bypass.)
What happens after the airway is secured?
Your baby will be placed in critical care. There, a neonatologist will examine your baby for any possible problems associated with CHAOS discussed above. Your baby will probably have blood tests, x-rays, ultrasound and an echocardiogram.
Once other conditions are ruled out, your baby will probably undergo surgery to either remove the obstruction, if necessary, and/or to repair the malformation in the larynx or trachea, such as atresia, that caused the problems.
What treatment will I have?
After delivery, our surgeon will work closely with an anesthesiologist to make sure any risks of maternal bleeding are minimized.
For more information about maternal risks associated with fetal surgery, be sure to talk to your doctor so that you understand them fully.
What's the outlook for my child?
After treatment, your baby will require close follow-up care.
Otherwise, your child should be very healthy.
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”