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There are many ways you can help children and their families get the care they need.
If your child has been diagnosed with a congenital diaphragmatic hernia (CDH), you can rest assured that at Boston Children's Hospital your child is in good hands.
Each child with a CDH is unique, so treatment can vary based on the level of severity of the CDH, related anomalies and other factors.
At Boston Children's, fetal care specialists assist in the careful management of the mother's pregnancy and delivery, as well as the stabilization of the baby and postnatal treatment. This comprehensive, multidisciplinary care has resulted in high success rates.
Our team of fetal care specialists can be present at the delivery to assist the obstetrician and begin immediately begin care of your child. Extracorporeal membrane oxygenation (ECMO) is a heart and lung bypass system that does the job that the heart and lungs would be doing. ECMO may be used temporarily while your baby's condition stabilizes and improves. Having your baby at a hospital like Boston Children's that is equipped with ECMO is vitally important.
After your baby is born, he will be taken to and cared for in our Medical and Surgical Intensive Care Unit (MSICU).
Most babies will need to remain in the MSICU for a while after surgery.
Before your baby is discharged, we conduct many tests to make sure that all of his systems are working well.
These tests can include the following:
Some of these tests may also be repeated when your child is 6, 12, 24 and 36 months old.
A diaphragmatic hernia is a complex health concern that requires long-term follow-up. With that in mind, Boston Children's established an outpatient clinic to monitor and treat children born with CDH. There, your child will receive ongoing treatment from a multidisciplinary team of pediatric physicians, nurses and other care providers.
For more information on this program, see our outpatient clinic page.
It's essential to remember that many babies and their families have been down this path before. We've helped them, and we can help you, too.
There are lots of resources available for your family—within Boston Children's, in the outside community and online. These include:
On our For Patients and Families site, you can read all you need to know about:
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”