CLOVES Syndrome Pediatric Patient Stories

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Your Story

Riley's story

Riley is like most other kids. She likes to swim, read, dance and sing. However, the one thing that makes her different than most kids is she was born with CLOVES syndrome. 


 Follow Riley's journey:

Riley's mom's story

"Becoming a parent is an act of love and faith that no amount of planning can ever really prepare you for. And once you begin raising your child, the changes you go through as a person are profound. Raising a child with a rare disease is even more life altering."

Riley and care team members

Riley’s mother Kristen talks about what’s it’s like to raise a child with such a rare medical condition in a post on Thriving, Boston Children's blog for patients and families.

We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”
- Sandra L. Fenwick, President and CEO

Boston Children's Hospital 300 Longwood Avenue, Boston, MA 02115 617-355-6000 | 800-355-7944