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There are many ways you can help children and their families get the care they need.
The experts in our Celiac Disease Program are some of the best in the country when it comes to diagnosing and helping families manage celiac disease with a gluten-free lifestyle. We also have a vibrant and active support group, Celiac Kids Connection with more than 350 member families.
No parents want to hear that their child has a chronic illness, but the good news is that celiac disease (CD) is always treatable by changes in diet. This means that your child can avoid side effects associated with medicine, and as a bonus, often the whole family eats more healthily after a member is diagnosed with celiac disease.
Celiac disease is a lifelong intolerance to gluten—a protein found in wheat, barley, rye and also in oats that have been contaminated with gluten from other products. In people with celiac disease, gluten damages the lining of the intestines. This can prevent them from absorbing nutrients and cause a variety of other symptoms.
After your child is diagnosed with a celiac disease, you may feel overwhelmed with information. It can be easy to lose track of the questions that occur to you.
Lots of parents find it helpful to jot down questions as they arise–that way, when you talk to your child’s doctors, you can be sure that all of your concerns are addressed.
If your child is old enough, you might suggest that she write down some questions to ask her health care providers, too. Here are some questions to get you started:
It’s important for your family and your child to remember that your child is not being deprived of anything—instead, safe versions of certain foods will replace the ones she used to eat.
For more information on everything from recipes, shopping and cooking tips to sibling considerations to planning activities and travel, visit the Celiac Disease Program and Support Group’s online Family Health Education Series.
Celiac disease: Reviewed by Alan M. Leichtner, MD, FAAP
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We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”