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There are many ways you can help children and their families get the care they need.
An atypical teratoid rhabdoid tumor, often called AT/RT, is a very rare and fast-growing tumor of the central nervous system. If your child has been diagnosed with an ependymoma, there are a number of things that you should know:
As a parent, you undoubtedly want to know what may have caused your child’s tumor. More than 90 percent of cases of AT/RT are associated with a genetic defect. However, the cause of this abnormality is not known.
It’s important to understand that these and other brain tumors most often occur with no known cause. There’s nothing that you could have done or avoided doing that would have prevented the tumor from developing.
AT/RT grows very rapidly and, as a result, symptoms can develop quickly over days or weeks. Common symptoms of AT/RT include:
Your child’s symptoms may vary based on his age and the location of the tumor.
The symptoms of a brain tumor may resemble other, more common conditions or medical problems. Always consult your child's physician for a diagnosis.
For many tumors, we use a system of classification called “staging,” that physicians use to evaluate cancers. However, there is currently no standardized classification system for AT/RT. The tumor may be:
In addition, these tumors are classified as:
Using a variety of diagnostic tests, your child’s physician will gather as much information as possible about your child’s tumor and will discuss treatment options with you and your family.
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”