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There are many ways you can help children and their families get the care they need.
At Boston Children's Hospital, we know that the first step in treating your child is forming an accurate, complete and timely diagnosis.
Most babies with TAPVR show symptoms on the day they’re born. Severe cases are obvious, are considered medical emergencies, and are admitted immediately to the cardiac ICU.
Less severe cases show symptoms in the first few days of life. If your newborn baby was born with a bluish tint to his skin, if he’s having difficulty breathing, or if your pediatrician hears a heart murmur, you may be referred to a pediatric cardiologist, who will perform a physical exam. Your child’s doctor will listen to your baby’s heart and lungs, measure the oxygen level in his blood (non-invasively) and make other observations that help to determine the diagnosis.
Some (not necessarily all) of the following medical tests may also used to diagnose, or confirm a diagnosis of, TAPVR or PAPVR:
You’ll be comforted to know that Boston Children’s pioneered interventional catheterization for many congenital heart defects and is a leader in the use of this procedure.
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”