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Apert syndrome, also known as acrocephalosyndactyly, is a genetic disorder characterized by deformities of the skull, face and limbs.
Apert syndrome may include:
Other features of the disorder may include:
Apert syndrome can occur between 1 out of every 60,000-80,000 births.
Download the Boston Children’s Hospital Apert Syndrome Guide to learn more.
Having a child born with Apert syndrome may feel over¬whelming. Knowing your child will need medical care from a large team of doctors and clinicians is a lot for any parent to process. We hope you find comfort knowing that the Craniofacial Program at Boston Children’s Hospital is a national leader in the treatment of children with Apert syndrome.
Families seeking the very best care for their child come to Boston Children’s for our:
For an appointment with the Cleft and Craniofacial Center, more information or to obtain a second opinion for your child, please call us at 617-355-6309 or email firstname.lastname@example.org.
For families residing outside of the United States, please call Boston Children's International Health Services at +01-617-355-5209.
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”