Anencephaly

What is anencephaly?

Anencephaly is a condition present at birth that affects the formation of your baby's brain and the skull bones that surround the head. Anencephaly results in only minimal development of the baby's brain.

Often, the brain lacks part or all of the cerebrum, the area of the brain that is responsible for thinking, vision, hearing, touch, and movement). There is no bony covering over the back of the head, and there may also be missing bones around the front and sides of the head.

How we care for anencephaly

For expectant parents, finding out that there might be a problem, like anencephaly, with the health of your child understandably brings up questions, concerns and fears. The Advanced Fetal Care Center of Boston Children's Hospital supports the needs of families and referring physicians at every step of care for a wide range of congenital anomalies, from diagnosis and counseling through treatment and follow-up care. AFCC's groundbreaking work has significantly improved outcomes for babies with complex health concerns, while delivering hope and compassionate care to families along the way.