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Experience Journal Website |
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Dr. DeMaso and his colleagues have designed a website called the Experience Journal (www.experiencejournal.com). This site consists of a collection of stories, pictures, and personal experiences from families about what it has been like to live with their children's heart disease. It represents the "collective wisdom" of these children and their parents as well as their health care providers. Family members are welcome to enter and explore the Experience Journal.
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