Pulmonary Vein Stenosis Program
Pulmonary Vein Stenosis Clinical Trial:
In order for your child to qualify for the study they must have:
- Evidence of intraluminal pulmonary vein stenosis in > 1 vessel
- Acceptable organ function
- Evidence of myofibroblast neo-proliferation, if biopsies were obtained
After initial contact, we will need the following information in order to help determine whether or not your child qualifies for the current study:
- Current patient status
- Clinic notes
- Surgery documentation
- Echo CD's and reports
- Catheterization CD's and reports
- CT scan CD's and reports
- Recent lung scans
- Insurance information
Please have CD's mailed to:
Attn: PVS team
Boston Children's Hospital
300 Longwood Ave
Boston, MA 02115
Please fax clinical documents to 617-919-3007 Attn: PVS team.
Feel free to contact us at firstname.lastname@example.org or call 617-919-3430 with any additional questions.
Please include your contact information so that we can follow up upon receipt and review of your child's information .
You can also schedule an outpatient appointment by calling 617-355-6000.