Adult Congenital Heart Service

Adult registry

The Adult Registry for Congenital Heart Evidence, Evaluation and Standards Database

Improvements in current and future care of adults with congenital heart disease hinge upon the collection and interpretation of "follow-up" data, coupled with innovation and multi-disciplinary collaboration.

The BACH ARCHES (Adult Registry for Congenital Heart Evidence, Evaluation and Standards) is our identity-protected data collection and management group. The database has many objectives including:

• Peer review monitoring of appropriateness or care and quality assurance
• Outcomes assessment and risk stratification
• Generation of evidence to develop medical and surgical care standards and innovative therapies

As a patient, you will likely be offered the opportunity to participate in some of the BACH ARCHES programs, but know that participation in the BACH ARCHES programs is not a requirement for care within the BACH group.