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BACH "ARCHES" |
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As an adult with congenital heart disease (ACHD'er), or as a family member or friend, you have come to recognize that improvements in current and future care hinge upon the collection, and interpretation of "follow-up" data, coupled with innovation and multi-disciplinary collaboration.
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The BACH ARCHES (Adult Registry for Congenital Heart Evidence, Evaluation and Standards) is our identity protected data collection and management group. The BACH ARCHES database has many goals including:
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- peer review monitoring of appropriateness of care and quality assurance
- outcomes assessment and risk stratification
- generation of evidence to develop medical and surgical care standards and innovative therapies
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You will likely be offered the opportunity to participate in some of the BACH ARCHES programs. Feel free to inquire about protocols that may apply to you. While offered to all, participation in the BACH ARCHES programs is NOT a requirement for care within the BACH group.
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