Childen's Hospital Boston  300 Longwood Avenue
Boston, MA 02115
(617) 355-6000
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Clinical Services (Gender Management Service (GeMS) Clinic):
Links
DSD Guidelines: Handbook for Parents provides information for parents and their children with DSDs.
Androgen Insensitivity

Androgen Insensitivity Syndrome Support Group (AISSG) provides information on Androgen Insensitivity Syndrome (AIS) and similar conditions.

Androgen Insensitivity Syndrome Support Group (AISSG) - UK is a consortium of worldwide support groups that owe their origins to the UK-based group.

Congenital Adrenal Hyperplasia

CARES Foundation, Inc. provides education and research for Congenital Adrenal Hyperplasia while providing the resources and the latest information available for managing life with CAH.

Hypospadias and Epispadias

Hypospadias and Epispadias Association gives parents the information and education needed to make informed decisions about their child's care.

UrologyHealth.org is the American Urological Association's website that features in-depth information on hypospadias and epispadias.

Intersex

Intersex Society of North America (ISNA) works to end the shame, secrecy, and unwanted genital surgeries for people born with an anatomy that someone decided is not standard for male or female.

Sex: Unknown is the companion website to the PBS documentary on intersexuality and includes personal stories and scientific theories on the disorder.

Klinefelter Syndrome

American Association for Klinefelter Syndrome Information & Support works for the education, support, research and understanding of 47,XXY and its variants.

Genetics Home Reference, part of the National Library of Medicine, has in-depth information on the syndrome.

MRKH (Mayer Rokintansky Kuster Hauser Syndrome) and Vaginal Agenesis

MRKH and Vaginal Agenesis: A Guide for Parents and Guardians addresses these issues and is part of the Center for Young Women's Health at Children's Hospital Boston.

Vaginal Agenesis: A Guide for Teens is written for teen girls.

Transgender links

Alliance for Gender Awareness, Inc. is an organization dedicated to addressing the unmet healthcare needs of patients with Gender Identity Disorder.

Gender Identity 101: a Transgender Primer provides an overview of being transgender by the Southern Arizona Gender Alliance.

Gender Identity Research and Education Society is a British-based website created to inform people about the issues surrounding gender identity and transsexualism.

Human Rights Campaign: Transgender, Gender Expression and Identity Issues provides education to the public on issues that affect transgender Americans.

Transgender Teens is a feature of the Discovery Health website and talks about transgendered teens and their families.

TransKids Purple Rainbow Foundation is dedicated to funding research and education aboout transgender issues to build a brighter future for all TransKids.

Turner Syndrome/Genetic Mosaics

Turner Syndrome Society of the United States works for medical research, the dissemination of state-of-the-art TS information, and social support services to individuals, families, physicians and the general public.

xyTurners provides information, advocacy, and networking for XY/XO issues.

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which can only be given to you by your personal health care professional.
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